Quality indicators: completeness, validity and timeliness of cancer registry data contributing to the European Cancer Information System
Population-based Cancer Registries (CRs) are tasked with collecting high-quality data, important for monitoring cancer burden and its trends, planning and evaluating cancer control activities, clinical and epidemiological research and developing of health policies. The main indicators to measure data quality are validity, completeness, comparability and timeliness. The aim of this article is to evaluate the quality of CRs data collected in the first ENCR-JRC data call, dated 2015.
Methods: All malignant tumours, except skin non-melanoma, and in situ and uncertain behaviour of bladder were obtained from 130 European general CRs for patients older than 19 years. Proportion of cases with death certificate only (DCO%), proportion of cases with unknown primary site (PSU%), proportion of microscopically verified cases (MV%), mortality to incidence ratio (M:I), proportion of cases with unspecified morphology (UM%) and the median of the difference between the registration date and the incidence date were computed by sex, age group, cancer entity, period and CR.
Conclusion: the results reported in this paper are to be interpreted as the baseline for monitoring CRs data quality indicators in Europe along time.
GIUSTI Francesco;
MARTOS JIMENEZ Maria Del Carmen;
NEGRAO DE CARVALHO Raquel;
VAN EYCKEN Elizabeth;
VISSER Otto;
BETTIO Manola;
2023-07-31
FRONTIERS MEDIA S. A.
JRC133569
2234-943X (online),
https://www.frontiersin.org/articles/10.3389/fonc.2023.1219128,
https://publications.jrc.ec.europa.eu/repository/handle/JRC133569,
10.3389/fonc.2023.1219128 (online),
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